so kindly. And you continued to cry off and on for weeks. You grieve; thatâs the conventional wisdom. You grieve for the child you thought you were going to have, though maybe itâs also for the parent you thought youâd be. But soonâor so you keep hearingâyouâll find that having an answer provides some measure of relief. Because now you understand why she acts the way she does. You understand that some problems are neither your fault nor hers.
You can begin to educate yourself; itâs hard to use Google if you donât have the proper search terms. You can learn what kind of help your child needs, and you can find other people in the same boat.Eventually, youâll feel less alone. A diagnosis, the conventional wisdom goes, is a beginning, rather than an end.
Youâre not quite there yet, though, to that place of clarity and relief. Now that you have the all-important label, the letters that will make your daughter eligible for the ominous-sounding set of benefits known as âservicesââOT and PT and plain old Tânow that youâve gotten an answer thatâs supposed to be definitive, what are you supposed to do about it? There doesnât seem to be much of a consensus.
Just one more week until the pest control people come to finish their treatment, and then all this will be over. The day they come to spray, youâll stay in a hotel, just like you did the first time. Itâs money through your fingers and not fun for anyoneâthe four of you crammed into one room, waking up in strange beds on a school day. But itâs better than putting your kids down for the night on mattresses still damp with pesticides. Better than bringing them home before youâve had a chance to sweep up the white powder that settles on the floor as the toxic mist dries in the air.
You collect pieces of clothing, keeping track as you go: underwear for yourself, a shirt for Tilly. Denim legs twirled in the corners of bedsheets, spun tight by the movements of the dryer. You pull like youâre playing tug-of-war at a picnic.
Joshâs clothes are in here, too, mixed in with the rest, but you donât take any of them out for him. He can find his own. There was a time, you remember with some astonishment, when you used to do nice things for him on purpose. Itâs sad, and maybe youâll reach that point again someday, but itâs not going to be now. You have a feeling of plague and panic, like youâre living through the black death or the influenza epidemic of 1918. In plague days, youâre learning, itâs every man for himself.
âI am,â you think, and âI want.â And you have no idea how either sentence ends.
chapter 3
Iris
June 3, 2012: New Hampshire
We donât unpack right away, just drop our suitcases in the right rooms. We all sort of separate for a while, now that weâre not stuck together in the car. Momâs doing something in the kitchen, making lots of busy noises, and across the room, Dadâs lying down on the couch with his eyes closed, though I donât know if heâs really asleep. Tilly is walking around, telling herself a story about giant statues coming to life; I can hear her whispering âSpring Temple Buddha,â which is a really tall statue in China or someplace. And Iâm sitting on my bed, wishing I was anywhere else in the whole world.
Iâm in our new bedroom, mine and Tillyâs, which I hate. The walls are brown wood, tall up-and-down planks with knotholes in them, and thereâs a thin blue rug that Iâm not ever going to walk on barefoot. Our beds are probably the same size as our beds at homeâall twin beds are the same, right, so you know the sheets will fit?âbut they look skinny and lumpy and just kind of sad. The bedspreads are dirty white with little flowers on them, and the pillows are so thin they barely even puff up the covers. I canât believe