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my toes. I can’t grip a pen. I have blood in my stool. I’m in constant pain, and though I can’t imagine how this can be, everything seems to be getting worse.
    There have been, of course, many theories over the course of the past fifteen months. There have been, along with each of these theories, their attendant diagnostic procedures. Another clinic. Another doctor. Another bill with its neat, itemized columns.
    I am told I have lupus. I have a viral infection. I have heavy metal poisoning, environmental illness, food allergies. I am psychosomatically ill. I have Hodgkin’s disease. I am experiencing aftereffects from a concussion I had when I was twelve. I have systematic tendinitis, fibromyalgia. I have a chronic pain syndrome, a rheumatoid disorder, sympathetic reflex dystrophy, peripheral neuropathy, a reaction that harks back to an overprescription of penicillin during my teens. I might have MS, but it’s too soon to say, we’ll just have to wait and see.
    I have tests and more tests: bone scans, nerve conduction studies, MRI’s, dozens of X rays. I have neurological exams in which I close my eyes, touch my index finger to my nose, attempt to stand on one foot. I have psychiatric exams in which I’m asked if I hear voices. I have rheumatoid exams in which the same blood tests are repeated again and again. I have ultrasound treatments, paraffin dips, TENS, biofeedback, injections of B vitamins. I have endless physical therapy, which inevitably makes things worse, for any repetitive activity involving my arms or legs causes still more inflammation. At a university “teaching” hospital, I have an exquisitely painful lumbar block—“to restart your neurological system,” I am told, “just like pressing the start button on a furnace.” In retrospect, it seems as if the true purpose of the block—can this be true?—is to provide experience giving such blocks, a standard procedure during childbirth, for the first year residents. Eagerly, they line up to insert the needle into my spine, and it is only after four have tried and failed that the attending physician steps in. Neither this block, nor any of the ones that follow, make any difference beyond a spectacularly bruised back.
    â€œMS?” says the next doctor, the one in private practice who combines homeopathic remedies with traditional medicine, the one who does not accept insurance. “I don’t know what this is,” he says, “but it certainly isn’t MS. More like a sports injury. You’ve aggravated your connective tissueto the point where your immune system doesn’t know when to quit.”
    It is true that I played the piano for four to five hours every day, dreaming of becoming a concert pianist despite “chronic tendinitis” in my arms and wrists. It is true that I walked and jogged with “shin splints” in my legs. A sports injury doesn’t seem too far fetched. I try the special diet that the homeopathic doctor suggests, avoiding eggs, wheat, sugar, corn, dairy products, nuts. I swallow aloe vera juice, burdock root, goldenseal. I have cranial sacral therapy; I visit a chiropractor; I see an herbal healer who reads my irises and studies my tongue and prescribes several foul-smelling tinctures. When none of this works, I fly to Boston, to the sports medicine specialist I’d seen the previous fall. There, I have surgery on both legs to relieve raised pressure in the muscle compartments, but this leaves me even worse off than before, for not only do the incisions create more inflammation, but they result in permanent nerve damage that will complicate future diagnoses.
    I fly home.
    There months pass as I wait for an opening at the Mayo Clinic in Rochester, Minnesota. It is here, in the fall of 1986, that I receive the first round of steroid therapy that appears to help: injections of cortisone, oral prednisone.
    After that, my mother and I make